Up close and personal with Kylie Tout

Cancer touches many families....it's such a wide spread disease that sometimes it can take hold of several members of the one family......this was the case with Kylie Tout (Srapping Clearly)....and today she shares her Cancer Story with us all.........................thanks Kylie!

Kylie created this PINK ALBUM to record her family memories.

Sadly after several diagnosis of Breast and Ovarian Cancer on the Paternal side of my family my siblings and I became eligible to participate in a trial for genetic testing.

Several of my Aunts and first cousins had all been diagnosed with Breast Cancer - two Aunts diagnosed have successfully had their Breasts removed and are now in remission healthy and happy, three of my cousins also eligible for testing where tested, two positive one negative, one already new she was positive suffering from Breast Cancer going through for the removal of lumps, another tested positive and opted to have her Breasts removed which has been successful and the third sister tested negative.

My sisters and I all have been tested my brother opted not too although he now has children so I imagine he will now change is mind.

The testing on our family history showed that my grandfather had the BRACA 1 gene. There are eight children in the family four have been positively tested the other four have opted not to be tested. My father turned out to be one of the positive of the four children tested. I was really concerned about the family history and when this opportunity came up for the Genetic testing trial I did not hesitate nor did my two sisters. I was really concerned obviously for myself but also that my children could also have the gene.

The process of Genetic Testing began with an interview with the Genetic Councillor she talked about the gene and the processes we would need to go through once finding out our results. My older sister was tested in Batesman Bay and myself and my younger tested where tested together in Gundagai our home town. A simple blood test done quickly but the results took 8 weeks a long time to wait.

My sister and I decided to receive our results together and the councillor made it quite clear that we were not to do this alone and mother also came along with us. Unfortunately my older sister came back positive as did my younger sister and I tested negative. Of course I was relieved with my results but I was also sad for my sisters and needed to be supportive of their results. I must admit I did feel a little guilty as did my father who blamed himself. We all reassured him that it was not his fault.

My sisters now had to face the awful decisions that comes along with having the BRACA 1 gene - opting to have their Breasts removed was on high on the list and after a long time of research and study and seeking help professionals and from others in the same situations one sister has opted to have her breasts removed which will happen in just a few weeks time, she is very nervous and apprehensive this is such a huge thing and she is so brave. My other sister is trying to stay proactive and vigilant and will make the decision when she feels it is the right time, I am here to support them all the way.

 

 xxxxxx          edited last night          xxxxxxxxxxxxxxx

 

My father was yesterday diagnosed with rectum cancer we are now  waiting for the next steps

 

xoxo

Kylie

Comments

[Lyn Dwyer]

Kylie.....thanks so much for sharing your family story with us all....my goodness you guys have done it tough..........and now also with your dad going through the Cancer journey......you have given us all a good message to have regular check ups and to encourage family members to also.....your Mini Album is just adorable and such a valuable family record to have......hope things turn around soon for your family...best wishes to your sisters and dad...xoxoxo (((((((( hugs )))))))))

[TracyM #6773]

Thank you for sharing your beautiful mini-album and cancer story with us Kylie. Thinking of you & all your family and hoping that all the wonderful advances they are making in medicine will help make the future brighter for you all.

[Tamara]

Kylie, thank you for sharing your & your family's story. I wish you all the best for the future, both short & long term.

[Beryl #7212]

Kylie, what a wonderful way to remember those taken by Cancer by sharing the amazing ablum you have created. Thank you. Warm fuzzies {{{{{@}}}}}to you & your family.

[Tara capewell]

thank you so much kylie for sharing your story. i never knew you could be genetically tested for these type of cancers. my thought are with you and your family as you battle on with this horrible disease.

[Vicki]

Thanks for sharing. Hoping we find a cure one day soon for you/your family and everyone else who suffers because of this disease.

[Kylie Tout]

Thank you ladies for all your kind words and thanks to Lyn for letting me share this story. My thoughts and prayers are with anyone traveling this same journey.